EOAR SEMINAR, OCTOBER 2021
What Would Lin Do? Studying Medical Information Commons Using Mixed Social Science Methods
Prof Robert Cook-Deegan (Arizona State University)
Prof Amy McGuire (Baylor College of Medicine)
Dr Janis Geary (Arizona State University)
We have used mixed social science methods to study policy challenges facing the integration of genomic technologies into research and clinical care. These include historical case studies, descriptive landscapes and inventories (including but not limited to patent landscapes), systematic assessment of related scientific or clinical initiatives, and formal policy Delphi methods—iterative use of expert panels representing diverse stakeholders, advocates, and scholars). One unifying theme is the construction (or failure to construct) effective knowledge commons. We aspire to revive the spirit of vigorous, policy-oriented empiricism that characterized the work of Elinor Ostrom and continues to be refined by contemporary scholars.
When: Tuesday, 19th October 2021, 9-10 AM (ACST)
Where: Online. Please RSVP to openstemcells@adelaide.edu.au
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Prof Robert Cook-Deegan is a researcher in the School for the Future of Innovation in Society at Arizona State University. His research interests include science policy, health policy, biomedical research, cancer, and intellectual property.
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Prof Amy McGuire is the Leon Jaworski Professor of Biomedical Ethics and Director of the Center for Medical Ethics and Health Policy at Baylor College of Medicine. She researches ethical and policy issues related to emerging technologies, with a particular focus on genomic research, personalized medicine, and the clinical integration of novel neurological devices.
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Dr Janis Geary is a Postdoctoral Research Fellow in the School for the Future of Innovation in Society at Arizona State University. Her areas of expertise include knowledge commons, community-driven public health research, Indigenous health research, and H. pylori infection and related illnesses.
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